Monday 19th June was World Sickle Cell Day and our local CLAHRC has been conducting a survey, which found that a greater awareness of sickle cell disease would improve patients' experience, and that staff in emergency settings had a relatively poor knowledge.
They have produced an infographic.
To improve knowledge, here are some resources (list also posted on the UHL Clinical Librarian blog):
Professor Simon Dyson, De Montfort University, especially the Resources and Information page, which lists UK organisations and resources for schools. Professor Dyson has also produced some open educational resources.
Rest of the UK
Clinical Knowledge Summaries for an evidence based summary.
HealthTalk for patient experiences of screening.
NHS Choices for an overview and links to other NHS resources.
NICE material is included in the set relating to blood conditions - a clinical guideline (CG143) and a quality standard (QS58)
Sickle Cell Society - UK based patient support organisation
Rest of the world
emDOCS - The sickle cell patient: ED management of acute complications. Detailed discussion from this US based emergency medicine blog.
Life in the Fast Lane (LITFL) - Sickle cell crisis. Another blog for emergency medicine and critical care, based in Australia and New Zealand.
MedGen for everything genetic.